It is also called 65 Roses Awareness Week because most children learn to say their condition, Cystic Fibrosis, by calling it 65 Roses.
Fund raising events will be taking place all over the country this week.
Funds are collected at both a national level, and also local level by branches, and will help fund the work of Cystic Fibrosis Ireland in its fight for adequate national and local services.
The organisation says:
"Funding is paramount to our grant in-aid service, which provides financial help and access to vital services: Exercise, Transplant, Bereavement, Social & Distress Grants are only but a few of the financial supports provided.
Funding is required for vital isolation beds and new treatment centres such as Dublin, Cavan, Drogheda, Castlebar, Limerick and Waterford. This will mean that people with CF will have centres with adequate facilities to avoid cross infection when they attend hospital. These services are not an option for better health, they are essential and they are needed now. Our goal is to provide these facilities in the shortest timeframe possible.
Cystic Fibrosis Ireland is committed to funding research to advance knowledge and understanding of Cystic Fibrosis.
A key objective of the Association is also to contribute to the development and improvement of CF services throughout the country. The ultimate aim of research is to find a cure to CF, but in the meantime it is imperative we support research that aims to improve current methods of treatment and management of the disease as well as enhance the quality of life of those living with Cystic Fibrosis.
Find out what events are taking place this week by visiting the CF Ireland Website:
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