I was honoured and delighted to be the guest speaker at this event presented by Sickle Cell and
Thalassaemia Ireland in collaboration with eDundalk in Creative Spark, Dundalk.
This event, to mark World Sickle Cell Day 2014 was organised to raise awareness of this serious disease.
Sickle Cell & Thalassaemia Ireland is the official organization set
up and run by Sickle Cell and Thalassaemia families, patients and
volunteers to raise awareness and support of Sickle Cell and
Thalassaemia in Ireland through educational workshops, seminars, media,
printed information, promoting genetic screening and to encourage public
policy change.
Their vision is: To implement proper awareness programmes that will promote better
understanding of Sickle Cell and Thalassaemia: a key factor to quality
treatment, improved patient support and research for a cure.
Their mission is: Is to fight the growth of SCD and Thalassaemia in Ireland and create a
proper support network between the patients, the community and the
health professionals.
You can visit their website at www.sicklecellireland.ie or see them on Facebook
https://www.facebook.com/sicklecellandthalireland
I would like to thank and congratulate Amaka and eDundalk for their continued work on behalf of the local community and I will continue to support them in their work on this particular project.
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